“Sticks and stones may break my bones…and words can hurt me, too.” Understanding the difference between a person with dyslexia and a dyslexic person

Author’s rating for this post: 1 nerd emoji
It’s intended for everyone. What do you think? Add your rating at the bottom.


Who am I? I am a sister. I am a speech pathologist. I am a researcher. I am kind. I bake cookies that will blow your mind. I also have a speech impairment, an attention deficit disorder, and anxiety. I embrace all of my unique characteristics, but only some of these traits define me. My attention deficit undoubtedly impacts the way I experience the world, but it has little influence on how I define myself as a person. Being a clinician, a researcher, a sister, a kind and thoughtful human being—these are attributes that constitute my identity, which I rely on to shape my values, establish priorities, and make choices.

A person’s quality of life fundamentally depends on his or her power to self-identify. I would be deeply unhappy if my medical conditions imposed on my sense of self. If I had been defined by my speech impairment, I never could have become a speech pathologist! But, not everybody is afforded the opportunity to choose which traits define them. People with disabilities in particular are often characterized by their disabilities, labeled by someone else in a position of power. Parents have an “autistic son.” Teachers have a “special needs student.” Doctors have a “dyslexic patient.” A child gets branded by a disorder before having a chance to develop his or her own identity.

Using person-first language is a decisive step that we as a society can take to empower people with disabilities to self-identify. Person-first language is a linguistic technique used to emphasize the individual. It describes what a person has, does, or needs, but not who a person is. Using person-first language means saying “a person who stutters,” rather than “a stutterer.” It’s referring to “the student who uses hearing aids” rather than “the hearing-impaired student,” or, “the family with a child who has Cerebral Palsy,” rather than “the Cerebral Palsy family.” It’s acknowledging the “Pulitzer Prize-winning investigative reporter from the New York Times who has arthrogryposis,” rather than portraying him like this. (This article by The Arc also discusses representation of people with disabilities.)

Nobody wants to be defined by what they can’t do, or by a circumstance they didn’t choose. Disabling conditions such as autism spectrum disorder, dyslexia, or Down syndrome, are heavily stigmatized. People with impairments are marginalized, mistreated, and perceived as “different,” or “not normal.” Negative attitudes towards individuals with disabilities can impact physical, emotional, and overall well-being even more than the condition itself. Using disability-first language emphasizes a person’s limitations. Using person-first language, on the other hand, features the individual, not the disability.

Stephen Hawking (1942-2018): a world-renowned cosmologist, space traveler, scientist, and author, who also used a wheelchair and an alternative communication system. Focus on the person’s strengths, skills, and accomplishments—not their limitations!

For those of us who value respect and equality, changing the stigma around disabilities is the ultimate goal. Laws and policies supporting the rights of people with disabilities have materialized and gained traction over the past 20 years (here’s a resource about person-first language from 1992!). But, a society where impairments are not disabling—where the environment is supportive and enriching for every person regardless of diagnoses or disorders—is still at least a few generations away. A critical step towards equality is changing our culture’s attitudes towards people with disabilities, and using respectful language is essential to progress. (Kathie Snow’s been working hard to change the paradigm through Disability is Natural!)

Using person-first language is especially important for anyone whose views are taken as authoritative. Descriptions used by experts such as scientists, doctors, policy-makers, principals, parents, teachers, and service providers permeate through society. Terms used by specialists are quoted by the media and recast into everyday language, which impacts not only how the world perceives individuals with disabilities, but also how individuals perceive themselves.

Updating the language we use to describe people or groups is a huge undertaking. Changing any habit takes time, practice, and perseverance. At first, it may feel unnatural to say “children from families with low socioeconomic status,” instead of the more common phrase, “poor children.” But, once the habit is formed, “the student who uses cochlear implants” will roll right off the tongue—I promise! Then, you’ll also start noticing the pervasiveness of disability-first language in everyday life, and you might wonder if mentioning the person’s disability was even necessary. It definitely requires more words to use person-first language. Scientists and reporters may balk because of strict word counts and the need for concise phrases in publication-quality writing. But, it’s worth the effort to promote a more inclusive society.

Some people feel their identity is inseparable from a diagnosis. For example, members of the Deaf community (take note of the capital ‘D’) who use American Sign Language do not consider hearing impairments disabling or restrictive in any way, and they are proud to identify as Deaf. Some people with autism spectrum disorder also feel strongly that their identity is intertwined with autism, and they prefer being identified as “an autistic person,” rather than “a person with autism.” Perhaps a better term for what I’m advocating for is “identity-first” language. Individuals who have a strong sense of self, integrate a medical condition into their identity, and use their powers to reframe the conversation about disabilities—all the more power to them!! I encourage everyone to make personal connections with people in their lives who have disabilities. Ask questions, and listen to the voices of people who are #actuallyautistic or #actuallydeaf. But, if you aren’t sure how a person chooses to identify, using person-first language is an explicit way to show respect and empower people to separate themselves from unwanted labels that provoke stereotypes, negative attitudes, or differential treatment. 

So…who am I? I am a sister. I am a speech pathologist. I am a researcher. I am kind. I bake cookies that will blow your mind. I also have a speech impairment, an attention deficit disorder, and anxiety. Only some of those traits define me, and I decide which ones. My speech impairment didn’t stop me from becoming a speech pathologist, nor will any other medical condition dictate my identity without my consent. Every person has the right to choose what characteristics define them, whether that includes a medical condition or not.

Below are 11 ways to use person-first language. Person-first language pertains not only to individuals with disabilities, but to anyone with a condition, characteristic, or behavior that might be stigmatized, used to cultivate a harmful perception, or stereotype.

Avoid: Try:
“A stutterer” “A person who stutters”
“Special needs students” “Students who require accommodations during exams”
or “students who need extra support”
“Cleft palate kid” “The kid with a cleft palate”
or
“The kid who was born with a cleft palate”
“Hearing-impaired client” “Client with a hearing impairment”
or “Client who uses hearing aids”
“HIV patient” “Patient with HIV”
or “Patient being treated for HIV”
“Dyslexic group” “Group of participants with dyslexia”
“A schizophrenic” “A person diagnosed with schizophrenia”
“The learning-disabled child” “The child with a learning disability”
“Normal speakers” “Speakers with typical development”
or “speakers with no history of hearing impairment”
or “speakers whose test scores fell within normal limits”
“Poor families” “Families living in poverty”
or “Families with low socio-economic status”
or “Families with income below the federal poverty line”

Allie Johnson is a PhD student in UMD’s Hearing and Speech Sciences department. She also has a Master’s degree in Speech Pathology from the University of Wisconsin-Madison. Her research focuses on speech development in children with cochlear implants. She really does bake good cookies!


How would you rate this post?

EveryoneDabblersNerdsExperts (5 votes, average: 1.60 out of 4)
Loading...

Seeds for Thought: Is there Structure in Birdsong? We may be underestimating the communication systems of birds.

Author’s rating for this post: 4 nerd emoji
It’s intended for experts. What do you think? Add your rating at the bottom!


A group of alien linguists receives a modest grant to do fieldwork on the communication systems of animals on Earth. They notice two groups making a lot of noise: birds and humans, and since there are a lot fewer humans than birds, they decide it’s more feasible to focus on the featherless bipeds. They record all the different sounds we make, the order in which they are usually produced, and who we’re with and what’s around us when we converse. After analyzing terabytes worth of data, they gain some compelling insights into our communication system: they discover phonological rules, dialects, vowel formants, and categorical perception. They posit reasonable hypotheses about the function of language in building alliances, courting mates, and managing conflict. But, I would argue, following Chomsky, that they’d be missing out on fundamental properties about the nature of language.

For one thing, since the relationship between sounds and meanings is essentially arbitrary, they would have a difficult time uncovering what our words mean or even which segments of the sound signal are functioning as words. On top of that, without access to meaning, they would have very little chance at discovering rules and principles of how words fit together, i.e. syntax. As a result, these alien linguists would miss out on the structure of human language: how words combine to form phrases that can join in infinite ways with other phrases. Despite having only studied the surface of our language, they would conclude that these humans lack the infinite generativity and recursive rules of their own beautifully unique alien language.

After decades of humans studying the communication systems of birds, the predominant consensus is that birdsong is all surface: no compositional meaning, no hierarchical combinations of phrases, only strings of sounds. And, while I agree that there is no strong evidence of structure below the surface in birdsong, I would argue that those alien linguists, without our intuitions about how words fit together, without our judgements of what constructions are acceptable and not, would be hard pressed to find evidence of structure below the surface in human language.

So, when it comes to birdsong, are we the alien linguists? Are we missing out on structure below the surface?

Budgerigar (Melopsittacus undulatus) flock. Originally posted to Flickr by anna banana and licensed under licensed under the Creative Commons Attribution-Share Alike 2.0 Generic license.

Traditionally, researchers have analyzed the sequences of sounds produced by songbirds and parrots by using concepts from language and music: a note is a continuous trace on a spectrogram, a syllable is a collection of notes, and a motif or phrase is a grouping of syllables. They then characterize patterns in the order of syllables or phrases by using Markov chain models. These models capture how the probability of an element occurring in a sequence depends on the previous elements. If the two foregoing elements help to predict the next one, then it is a 2nd order Markov model. If three elements, then 3rd order, and so on. Most birdsong can be characterized by low (1st or 2nd) order Markov models. Vicky Hsu, a former PhD student at UMD, studied the complex and variable warble song of parakeets and found that it can arguably be best captured by a 5th order Markov model. This is very impressive but still categorically different than the hierarchical depths of human language.

Yet, think about this: if you just studied the sound or sign patterns of human language, then you could also characterize them with Markov models, as our own Bill Idsardi has argued. You would have no idea, of course, that there is structure below the surface. Like the alien linguists, you would confidently assert that human language patterns are Markovian in nature, easily computable by finite-state machines. Could that also be the case for us and the birds?

In my view, this question is still open and important. Uncovering the putative structure of birdsong would give us an unparalleled window into the minds of birds, possibly helping us to better understand the workings of the computational devices inside all of our skulls (whether bird or human). But needless to say, it is not satisfying just to claim that structure in birdsong is possible. We want to find evidence either way. Here are two possible steps forward I think we could take:

  • While there is no evidence for anything like words in birdsong in our studies of syllables and motifs, we might be wrong about the fundamental units in their communication systems. Recent studies have shown that songbirds and parakeets are exquisitely sensitive to temporal fine structure (TFS) — rapid changes in the amplitude and frequency of the acoustic waveform. Their perceptual abilities in this dimension actually exceed our own: zebra finches, for example, can hear changes in TFS for periods as short as 1-2ms while humans require periods 3-4ms long. This means that birdsong may sound very different to the birds than to us. Thus, while many birdsongs appear simple and repetitive to us, more complex patterns and variability could be embedded in the strings. Examining temporal fine structure patterns and understanding perception in this acoustic dimension could help us uncover any hierarchical structure, if it exists.
  • While we are stuck looking at strings of sound when analyzing birdsong, there are tools out there to help us decode structural rules governing the strings. Much like we can make up minimal pairs of sentences and ask human subjects to make acceptability judgments in order to test hypotheses about grammatical dependencies, we can ask the birds to “judge” strings of sounds as valid and invalid. This is not an easy road to take, since, as I’ve argued, we lack the intuitions of a native speaker for what elements might fit together. But we can draw on clues to structural rules: for example, in parakeet warble song, “contact call-like” elements are the most common, perhaps playing a role like function words in human language, in which case they may mark the beginning or ends of “phrases”. When it comes to asking the birds to “judge” strings, the path is a bit more straightforward. We can, for instance, ask birds to perform a preference task: you put two perches in a cage and when a bird stands on one it triggers a set of sounds manipulated in one way (with, for instance, hierarchical embedding), and when it stands on the other it triggers sounds manipulated in another way (for instance, a random arrangement of the same sounds). If a bird prefers one set of sounds over another, this could tell us what strings are acceptable and allow us to uncover any grammar in birdsong, again if it exists.

These are, of course, only two ideas of many possible paths forward. What we really need is linguists with theoretical insights, computer scientists with powerful algorithms and processors, biologists with expertise in animal behavior and cognition, birdsong researchers with innovative behavioral testing paradigms and other passionate folks to come together and approach this question with as open of minds as when it comes to presupposing the complexity of our own thoughts. My view could certainly turn out to be totally wrong. However, I’d rather run the risk of being wrong than to miss out on an entire dimension of animal cognition and communication, which could help us better understand our own. I, for one, would like those alien linguists to come back with more colleagues and new ideas (and perhaps a generous new grant) to take a chance at delving below the surface of our language and minds.


Adam Fishbein is a PhD student in the Neuroscience and Cognitive Science program at UMD, using comparative work with birds to study the evolution of human language and cognition. He also has a Master’s in Professional Writing from USC and has published several short stories and a novel.


How would you rate this post?

EveryoneDabblersNerdsExperts (5 votes, average: 3.20 out of 4)
Loading...

 

Who is this blog for? Why we're using a "nerd-level" rating system.

We’re excited to share our thoughts about language science with anyone who will listen. But different posts will have different intended audiences. Some are aimed at other language scientists, while others are aimed at interested readers without a lot of background knowledge.

To give you a heads up about what you might be getting yourself into, we’re trying an accessibility rating system–a nerdliness rating, if you will.

1 nerd emoji  Everyone (interested in learning more)

2 nerd emoji  Dabblers (willing to put in some effort)

3 nerd emoji  Nerds (love to read about language)

4 nerd emoji  Experts (language science is their job)

Authors will indicate what kind of audience they’re aiming for with a nerd rating at the top of the post. Readers can also rate each post, which will provide useful feedback for the author as well as other readers.